Please note that this document does not constitute, and should not be construed as, legal advice. These guidelines are designed to help participants understand their rights under GDPR which came into force on 25 May 2018.
The updated data protection regulation is a series of conditions designed to protect an individual's personal data. Not all data collected for research is personal data.
Personal data is data such that a living individual can be identified; collection of personal data is sometimes essential in conducting research and GDPR sets out that data subjects should be treated in a lawful and fair manner and that information about the data processing should be explained clearly and transparently.
Some data we might ask to collect falls under the heading of special categories data. This type of information includes data about an individual’s race; ethnic origin; politics; religion; trade union membership; genetics; biometrics (where used for ID purposes); health; sex life; or sexual orientation. This data requires particular care. Under GDPR you have the following rights over your personal data :
Please note that these rights are not absolute and only apply in certain circumstances. You should also be informed how long your data will be retained and who it might be shared with.
Your participation in this research is very valuable and any personal data you provide will be treated in confidence using the best technical means available to us. The university's legal basis for processing your data as part of our research findings is a "task carried out in the public interest". This means that our research is designed to improve the health, happiness and well-being of society and to help us better understand the world we live in. It is not going to be used for marketing or commercial purposes. In addition to our legal basis under Article 6 (as described above), for special categories data as defined under Article 9 of GDPR, our condition for processing is that it is “necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes”. If your data contributes to data from a group then your ability to remove data may be limited as the study progresses, when removal of your data may cause damage to the dataset.